Published by Westley IgboLeave your thoughts
<p>Courtesy of the HDR UK Black Internship Programme, DARE UK had the pleasure of welcoming Abigail Ngwang, a medical student at the University of Leeds, to the programme delivery team for a period of 8 weeks. During her internship with the programme, Abigail supported the development of a public-friendly information kit on the DARE UK Federated Architecture Blueprint.</p>
Published by Westley IgboLeave your thoughts
<p>With support from UK Research and Innovation (UKRI), DARE UK (Data and Analytics Research Environments UK) is offering a unique funding opportunity for community groups working to advance sensitive data research in the UK. Applications are now open for new and existing community groups until Thursday, 28 September 2023 (18:00). </p>
Published by Westley IgboLeave your thoughts
<p>In its efforts to demonstrate the use of secure digital objects to standardise data transfer to and from Trusted Research Environments (TREs), the TRE-FX project is embedding public involvement and engagement strategies to uphold transparency and public participation in decision-making.</p>
Published by Westley IgboLeave your thoughts
<p>By connecting national-level data holdings in Wales and Scotland, TELEPORT is enabling secure access to improve research quality, leading to better health outcomes. In achieving this, TELEPORT is placing a strong emphasis on Public Involvement and Engagement (PIE), involving lay members in governance panels, appointing a public advocate, and seeking feedback to ensure transparency and public benefit.</p>
Published by Westley IgboLeave your thoughts
<p>Through deliberative workshops and surveys, SARA continues to involve the public in all aspects of delivery, bolstering trust and ethical practices. The project’s inclusive approach heralds a progressive era for data research and governance, amplifying its impact on the wider data research landscape.</p>
Published by Westley IgboLeave your thoughts
<p>Public Engagement in Data Research Initiative (PEDRI) has published the findings from the resource survey it conducted in January this year. The report captures the key outcomes from the survey completed by 123 respondents along with key recommendations for Public Involvement and Engagement (PIE) practice in the data research landscape.</p>
Published by Westley IgboLeave your thoughts
<p>In this article, Dr Colin Mitchell and Dr Elizabeth Redrup Hill, colleagues at PHG Foundation (a University of Cambridge charity), discuss their report on the concept and status of synthetic health data under data protection law, providing recommendations for developers, researchers, regulators, and policymakers to balance privacy protection and research potential.</p>
Published by Westley IgboLeave your thoughts
<p>In this blog, we examine how regular public updates and feedback incorporation have sustained engagement, making the SACRO project a testament to the power of collaboration in enhancing output checking in sensitive data research.</p>
Published by Westley IgboLeave your thoughts
<p>The DARE UK (Data and Analytics Research Environments UK) programme team held an online public webinar on Thursday, 20 July 2023, providing attendees with a comprehensive understanding of the community groups initiative, including its goals, structure, and the opportunities to contribute to the thriving UK sensitive data research community.</p>
Published by Westley IgboLeave your thoughts
<p>In the realm of sensitive data research, trust and collaboration are vital for success. That’s why the SATRE project, one of the five DARE UK Driver Projects focused on standardising Trusted Research Environments (TREs) in the UK, has made Public Involvement and Engagement (PIE) a cornerstone of its strategy. </p>
