A reflective piece on DARE UK’s outing at the Health Data Research UK Conference 2024: The Grand Challenges in Health Data highlighting key innovations from the programme and its funded initiatives.
The outputs from five DARE UK Driver Projects lay some of the foundations for a pioneering UK-wide network of TREs that will shape the future of sensitive data research in the UK. The detailed project reports are now available on our website, and a blog series will follow in the coming days, providing further insights into the outputs from each of the Driver Projects.
Conducted between November 2022 and June 2023, our latest review spotlights significant trends, such as a growing landscape, the crucial role of interoperability and standards, the centrality of trustworthiness, and the potential for the UK to spearhead interdisciplinary research with sensitive data.
DARE UK welcomes four dynamic community groups funded to deliver diverse projects spanning public engagement, community management, AI risk evaluation, and automated output checking between November 2023 and March 2024. These groups will aim to drive innovation and foster collaboration across domains, contributing to a connected and forward-thinking data research ecosystem.
Public Engagement in Data Research Initiative (PEDRI) has published the findings from the resource survey it conducted in January this year. The report captures the key outcomes from the survey completed by 123 respondents along with key recommendations for Public Involvement and Engagement (PIE) practice in the data research landscape.
The DARE UK delivery team recently hosted a Persona and User Journey Development workshop, bringing together stakeholders from various organisations to establish key personas for a future pan-UKRI council digital research infrastructure for sensitive data research.
The Office for Statistics Regulation (OSR) has released a report on data sharing and linkage across government, highlighting the progress made but also addressing significant issues and barriers that still exist in sharing and linking data, emphasising the need for changes to realise the potential of data sharing and linkage for the public good.
Midway through their funding period, the DARE UK Phase 1 Driver Projects teams presented their progress and future plans to key stakeholders and members of the public on the mid-project showcase day. This article provides further details on the projects’ aims and progress until midpoint and outlook for the future, including presentations from the showcase day.
DARE UK proudly announces its sponsorship of the ADR UK Conference 2023, collaborating with Administrative Data Research UK and the Office for National Statistics (ONS) to advance the use of administrative data for resilient and inclusive policies.
