We are looking for members of the public to join three online workshops exploring how personal data is used and linked, and how this should be communicated to the public.
What’s involved?
- Coming to 3 online workshops:
- 1 hour each
- Pre-reading: around 30 minutes
- before each workshop
- eVouchers to reimburse you for
- your time (£150 in total)
What’s involved?
- Anyone aged 18+
- Based in the UK
- Can attend all 3 workshops, no prior knowledge of data needed
- Anyone with an interest in how their data is used and linked in research and service delivery
Why take part?
- Learn how linked data is used to help shape future research and public services
- Share your views and shape best practice in how researchers communicate data linkage to the public
Workshop schedule
- Workshop 1 – What is data? (20 April 2026, from 6 pm – 7 pm)
- Workshop 2 – What is data linkage? (11 May 2026, from 6 pm – 7 pm)
- Workshop 3 – What happens when things go wrong? (15 June 2026, from 6 pm – 7pm)
If you’re interested, please click the button below to complete our short survey and register your interest.
The survey will close on 24 March 2026 and we will let you know by 31 March 2026 whether you have a place in the workshops.
For more information please contact us at catherine.stewart.20@ucl.ac.uk.
The Single Patient Record Integrity, Trust and Transparency (SPRINT) working group sets out to develop transparent measures for assessing the quality of record linkage and design materials on how to best communicate the concept of, and uncertainty in linkage performance.