With support from UK Research and Innovation (UKRI), DARE UK (Data and Analytics Research Environments UK) is offering a unique funding opportunity for community groups working to advance sensitive data research in the UK. Applications are now open for new… Read more
Fostering public confidence: How the TRE-FX project is integrating public perspectives in its delivery strategy
In its efforts to demonstrate the use of secure digital objects to standardise data transfer to and from Trusted Research Environments (TREs), the TRE-FX project is embedding public involvement and engagement strategies to uphold transparency and public participation in decision-making. Read more
Preserving public trust in the evolution of Trusted Research Environments: TELEPORT
By connecting national-level data holdings in Wales and Scotland, TELEPORT is enabling secure access to improve research quality, leading to better health outcomes. In achieving this, TELEPORT is placing a strong emphasis on Public Involvement and Engagement (PIE), involving lay… Read more
Engaging the public in enhancing data risk assessment: Insights from the SARA project
Through deliberative workshops and surveys, SARA continues to involve the public in all aspects of delivery, bolstering trust and ethical practices. The project’s inclusive approach heralds a progressive era for data research and governance, amplifying its impact on the wider… Read more
PEDRI publishes resource survey report
Public Engagement in Data Research Initiative (PEDRI) has published the findings from the resource survey it conducted in January this year. The report captures the key outcomes from the survey completed by 123 respondents along with key recommendations for Public… Read more
Are synthetic health data ‘personal data’?
In this article, Dr Colin Mitchell and Dr Elizabeth Redrup Hill, colleagues at PHG Foundation (a University of Cambridge charity), discuss their report on the concept and status of synthetic health data under data protection law, providing recommendations for developers,… Read more
Public trust at the heart: How the SACRO project is working with key stakeholders and the public to enable safer and faster output checking in sensitive data research
In this blog, we examine how regular public updates and feedback incorporation have sustained engagement, making the SACRO project a testament to the power of collaboration in enhancing output checking in sensitive data research. Public trust at the heart: How… Read more
Breaking barriers, building community: Exploring DARE UK community groups
The DARE UK (Data and Analytics Research Environments UK) programme team held an online public webinar on Thursday, 20 July 2023, providing attendees with a comprehensive understanding of the community groups initiative, including its goals, structure, and the opportunities to… Read more
Building trust and collaboration: A closer look at the SATRE project’s public involvement and engagement journey
In the field of sensitive data research, trust and collaboration are vital for success. That’s why the SATRE project, one of the five DARE UK Driver Projects focused on standardising Trusted Research Environments (TREs) in the UK, has made Public… Read more