By connecting national-level data holdings in Wales and Scotland, TELEPORT is enabling secure access to improve research quality, leading to better health outcomes. In achieving this, TELEPORT is placing a strong emphasis on Public Involvement and Engagement (PIE), involving… Read more

Through deliberative workshops and surveys, SARA continues to involve the public in all aspects of delivery, bolstering trust and ethical practices. The project’s inclusive approach heralds a progressive era for data research and governance, amplifying its impact on the… Read more

Public Engagement in Data Research Initiative (PEDRI) has published the findings from the resource survey it conducted in January this year. The report captures the key outcomes from the survey completed by 123 respondents along with key recommendations for… Read more

In this article, Dr Colin Mitchell and Dr Elizabeth Redrup Hill, colleagues at PHG Foundation (a University of Cambridge charity), discuss their report on the concept and status of synthetic health data under data protection law, providing recommendations for… Read more

In this blog, we examine how regular public updates and feedback incorporation have sustained engagement, making the SACRO project a testament to the power of collaboration in enhancing output checking in sensitive data research. Public trust at the heart:… Read more

The DARE UK (Data and Analytics Research Environments UK) programme team held a public webinar discussing the community groups initiative, including its goals, structure, and the opportunities to contribute to the UK sensitive data research community. In case you… Read more

In the field of sensitive data research, trust and collaboration are vital for success. That’s why the SATRE project, one of the five DARE UK Driver Projects focused on standardising Trusted Research Environments (TREs) in the UK, has made… Read more

The DARE UK delivery team recently hosted a Persona and User Journey Development workshop, bringing together stakeholders from various organisations to establish key personas for a future pan-UKRI council digital research infrastructure for sensitive data research. The DARE… Read more

DARE UK, in collaboration with partners of the Public Engagement in Data Research Initiative (PEDRI), is pleased to announce the launch of the inaugural PEDRI pilot campaign, Your Data in Action. Read more